3 May 2018
Up to 14 million older people with disabilities are currently affected by humanitarian emergencies and, even though they are among the most at risk, a new study revealed how they routinely face barriers that limit their access to assistance and protection.
Missing millions: how older people with disabilities are excluded from humanitarian response was launched this week (30 April) by the London School of Hygiene & Tropical Medicine (LSHTM) and GADAA member HelpAge International.
Although there is increasingly a focus on including older people and people with disabilities in humanitarian efforts, the study found that people who are both older and disabled risk having their rights to safe and dignified assistance and protection denied. Launching the report, a spokesperson from LSHTM recognised that people dementia and cognitive disabilities are often the most vulnerable and marginalised in humanitarian response.
GADAA welcomes this report as an important tool in recognising the need for inclusion in humanitarian response. Many humanitarian responders are unaware of dementia, a leading global cause of disability and dependence, in the context of an emergency, particularly of how to make a diagnosis or support people manage the condition. Few humanitarian programmes address the particular challenges and needs that people living with dementia and other disabilities face before, during and after humanitarian emergencies which can include:
- Difficulty escaping
- Difficulty obtaining information
- Difficulty accessing services
- Difficulty with daily activities
- Greater trauma
- Lack of specific guidance
The study drew upon a comprehensive literature review, data analysis, and interviews with older people affected by crises in Tanzania and Ukraine. It reveals how older people with disabilities fared worse than those without disabilities, and shows how this is related to various physical and institutional barriers, as well as hostile attitudes.
Data analysis revealed that between 7.8 and 13.7 million older people with disabilities are currently affected by humanitarian crises. It showed that these people, compared to older people without disabilities, are more likely to have been out of work, have a serious health problem, spend more than a quarter of their income on healthcare, be unable to participate in community life, and rate their quality of life as poor.
A person’s capacity to survive a humanitarian crisis correlates with their health and financial status. Those with money and good health are better able to escape and live elsewhere than those who have little money and poor health.
The literature review reflected this, showing how older people with disabilities were at greater risk of being left behind during emergencies in Ethiopia, Japan, Syria and USA. For those who do escape, older people with disabilities face barriers in accessing information and services, and they are more likely to be affected psychologically by crises.
Humanitarian responders often require recipients to collect aid or social protection payments in person, and that it can be difficult or impossible across long distances and tough terrain without transportation.
A 100-year-old woman who fled Burundi to camps in Tanzania who was interviewed for the study said: “It’s difficult for me to carry my food ration because of my poor health and my disabilities.”
Some older people with disabilities were humiliated by the negative attitudes of staff, and even told to leave the camp by younger people. Those interviewed in Tanzania said they felt forgotten about because of their age, and in Ukraine they felt vulnerable to theft when collecting their pensions.
Dr Sarah Polack, Associate Professor at LSHTM’s International Centre for Evidence in Disability, said: “Our research showed that older people with disabilities are at greater risk of poverty and more likely to have health problems that require costly medication. Yet they are rarely included in livelihoods programmes and activities that would offer opportunities to work and earn money, despite expressing a desire to do so.”
A 90-year-old woman in Tanzania said: “I feel sad that I can’t do the things I did before. I used to cultivate some land and be independent, but I can’t do that now. I used to have visitors and manage to give them something, but not anymore. I can’t do anything. This upsets me a lot.”
Homes, public facilities and toilets are typically not accessible, and lack wheelchair ramps, handrails and other low-cost adaptations that can make a big difference. This can leave older people with disabilities socially isolated, housebound and deprived of their dignity, threatening their mental health at a time when conflict, disaster and insecurity has already impacted on their emotional wellbeing.
An 87-year-old man in eastern Ukraine said: “My wife stayed in the basement all the time. I used to go outside sometimes, but she couldn’t go out because of the stairs. It affected her a lot.”
These barriers marginalise older people with disabilities and threaten their rights to independence, dignity and participation.
Madeleine McGivern, Global Humanitarian Advocacy Adviser at HelpAge International said: “For too long, older people with disabilities have been invisible in humanitarian responses, their fundamental human rights denied.”
“This must change. Barriers to accessing assistance and protection need to be removed, and the voices of older people with disabilities must be heard so that humanitarian responses meet their needs.”
The study advocates that donors, policy makers and humanitarian responders demonstrate leadership and commitment to ensure older people with disabilities are always included. Recommendations include:
- using the Humanitarian Inclusion Standards for Older People and People with Disabilities, and ensuring senior staff take responsibility to include these groups
- collecting data fully disaggregated by sex, age and disability, and only funding programmes that meet this standard
- recognising the right and capabilities of older people with disabilities, and consulting and including them at all ages
- investing in tackling age and disability discrimination, and giving older people with disabilities a voice
- supporting NGOs, state welfare departments and healthcare providers to make services and distributions inclusive and accessible.